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Posts with tag book

Meg Wolff blogs about a life in balance

Meg Wolff survived cancer -- twice. First she had bone cancer and lost her leg to the disease. Then she had breast cancer and was given little hope from doctors who thought traditional treatment could not save her. Maybe it couldn't. But Wolff found something that did save her -- a macrobiotic diet.

Life is all about balance, says Wolff who authors a website rich in content about the connection between diet and a healthy lifestyle. She offers up-to-date information on her blog, links to recipes and resources, a calendar of events, and a look at her very own book, titled, Becoming Whole, The Story of My Complete Recovery from Breast Cancer.

Wolff says that by changing her diet, she has changed her destiny. She is alive and well and thriving. Give her a visit and see for yourself.

Sunday Seven: Seven messages for the newly diagnosed

My mom's friend was diagnosed with breast cancer the other day. Since I've already been down the breast cancer path, she asked me to send this friend a supportive e-mail. I've done this before -- reach out to someone newly diagnosed -- but it's never easy. I never know quite what to say. Somehow, I figure it out, though.

Here are seven of the messages I shared with this woman who is just beginning her journey with Paget's disease of the breast, a form of breast cancer that shows up in the nipple as an itchiness or scaling that doesn't get better.
  • In the face of uncertainty, worry, and fear, here's some good news: once you gain more and more information about your diagnosis, the easier it gets. The waiting really is the hardest part. Knowing what lies ahead will give you some control over your path.

Continue reading Sunday Seven: Seven messages for the newly diagnosed

Thought for the Day: The Five Gifts of Illness, a book

Jill Sklar was diagnosed with Crohn's disease, a debilitating gastrointestinal condition, when she was twenty. Jill set out to investigate how others who have survived the diagnosis and treatment of a chronic life altering illness perceived themselves -- and the effect of that illness on their life.

The Five Gifts of Illness: A Reconsideration is the result of Jill's investigation. She interviewed over one hundred individuals who had suffered a wide variety of illnesses. Sklar discovered that five gifts emerged as common denominators among the survivors. Those five gifts form the heart of this book.

You can purchase the book on amazon.com.

Crazy Sexy Cancer documentary airs August 29

Kristina Collins wrote on August 5 about the book Crazy Sexy Cancer. She bought it for a breast cancer survivor friend and called it "a practical (and funny) survival guide with insights of other young women with cancer." There's even a Crazy Sexy Cancer website, she wrote. And a documentary too. Here's some scoop on the documentary:

The upbeat documentary Crazy Sexy Cancer airs on Wednesday, August 29 at 9:00 PM on TLC. It's the story of Kris Carr, actress and photographer -- now author and filmmaker too -- who in 2003 at the age of 31 was diagnosed with a rare and incurable stage 4 cancer. Weeks after her diagnosis, she began documenting her journey. It's a crazy sexy cancer story. So tune in if you're up for a good dose of inspiration and humor. Check out the seven-minute movie trailer here (click on "trailer"). And take a peek at Carr's blog here.

"I just don't want to die," says Carr. "I will do whatever it takes, whatever it takes." Her documentary is proof of that.

What Dr. Susan Love thinks

She's the guru on breast cancer, the woman who writes the continually updated breast cancer bible. She's Dr. Susan Love, author of Dr. Susan Love's Breast Book, and in the May/June 2007 issue of MAMM magazine, she shares some of her latest thoughts.

On milk ducts

Dr. Love says all breast cancer begins in the milk ducts. If we want to get rid of breast cancer, she says, we need to understand where it starts. Until recently, we weren't able to do that. Now, doctors can numb the nipple, thread a catheter into a milk duct and sample the fluid, cells, carcinogens, and hormones. By looking at the location where cancer develops, there's the potential to find out how it started and how to prevent it. In March, Dr. Love's Research Foundation sponsored a conference on this topic.

On MRI

Dr. Love is not a big fan of MRI. It's overly sensitive and finds everything -- most of which is not cancer, she says. MRI leads women on wild goose chases so Dr. Love likes to reserve this test for women at high-risk.

Continue reading What Dr. Susan Love thinks

Crazy Sexy Cancer book and documentary

I was at the book store yesterday and picked up a cool book for my friend and fellow breast cancer survivor Deb, her birthday is this week.

The book is titled Crazy Sexy Cancer Tips, a practical (and funny) survival guide with insights of other young women with cancer. Sheryl Crow writes the forward for the book!

I learned that they have a website and also a documentary called Crazy Sexy Cancer, an uplifting documentary about a young woman looking for a cure and finding her life.

In 2003, 31-year-old actress/photographer Kris Carr was diagnosed with a rare and incurable cancer. Weeks later she began filming her story. Taking a seemingly tragic situation and turning it into a creative expression, Kris shares her inspirational story of survival with courage, strength, and lots of humor.

Tammy Faye leaves cancer fate to higher power

Former televangelist Tammy Faye Messner -- formerly Tammy Faye Bakker -- posted Tuesday on her website (service is currently unavailable) a message about her health.

Messner, 65, reports that doctors have stopped treating her cancer -- she was diagnosed with colon cancer in 1996 and announced in 2004 the disease had spread to her lungs.

"I am down weight-wise to 65 pounds, and look like a scarecrow," the Charlotte resident shared on her site. "I need God's miracle to swallow. I look at young people and wish with all my heart for just one day of 'feeling great.'"

Continue reading Tammy Faye leaves cancer fate to higher power

Doll helps kids understand breast cancer

Kim Goebel was diagnosed with breast cancer in 1999, at the age of 43. Her sister Kris noticed a lot of moms saying "How am I going to tell my kids?"

Partners for a Cure Foundation was founded by the sisters and they began planning a doll and a book to familiarize children with the physical and emotional effects of cancer treatment. The dolls are soft and lovable but depict the hard truth in a special way so that the kids will be less scared of what is happening with their mom's treatment process.

Continue reading Doll helps kids understand breast cancer

Resource for helping those close to you diagnosed with cancer

While reading the spring issue of Cure Magazine I came across an article on a book called Help Me Live: 20 Things People with Cancer Want You to Know.

I have not read the book but I think it would be a great resource for those who have a family or friend with cancer. There is a need for a guide --I think this book can fill that gap.

Why would a guide be needed? I have found throughout my cancer journey that fellow survivors have many stories of unthoughtful, tasteless, ridiculous and sometimes funny comments from those around them. We can laugh at a lot of the comments because we know the person means well -- but sometimes it does go too far and can hurt.

What this book does is give the friend or family member some insight on what would be most helpful to the cancer patient. Based on the author's own experience with the disease and other survivors, each chapter tells intimate stories about one of the 20 most important messages people with cancer want to convey.

Help Me Live will help you find the word or gestures to show how much you care. There is never a 'right thing' to say or do but learning how to communicate effectively is very important.

This book can also be helpful to the cancer survivors themselves says Kathy Latour who wrote the article in Cure Magazine. She says "This book is not just for its intended audience of friends and caregivers, but for cancer patients too. In part, it affirms the cutting edge comments we made when Uncle Jack said something tasteless and painful. But in addition to reminding me of the many challenging people in my journey, the stories also revealed ways I could have handled them a little better"

Thought for the Day: Clear out the clutter

Spring is here. Time to clean the house. And time to give the 'ol body a once-over too.

According to Chinese medicine, spring is the best time of the year to cleanse the body. So if you're feeling lethargic, sluggish, and just plain weighed down, consider these invigorating tips from Penelope Sach's book Detox: Regaining your health and vitality.

Think about this:
  • Cut back on white flour products, sweets, and alcohol.
  • Drink one glass of water every hour to flush out excess sugar in your system.
  • Up your intake of herbal teas.
  • Add natural detoxifying agents to your diet, such as cabbage, broccoli, Brussels sprouts, fish, and eggs.

Sunday Seven: Seven ways to help

My friend -- who has a friend newly diagnosed with brain cancer -- greeted me at the door the other day and asked with a sense of urgency, "How can I help?"

"Help your friend?" I asked.

"Yes, she said, unsure of what she might say or do in this time of great difficulty for everyone involved.

I told her a few things. And then I thought of some more. It wasn't terribly easy to come up with these ideas. Because even though I myself was on the receiving end of help during my cancer journey, it's still hard to imagine what an individual wants or needs -- or doesn't want or need. But here's what I've got to offer.

I hope this helps my friend.

I hope it helps you too.
  • Allow your loved one to take the lead. If you sense this person wants to talk, then talk. If you sense talk is not welcomed, then don't talk. To determine whether or not your friend or family member wants to discuss cancer, approach the topic and judge the response you get. I know I can usually tell if someone is willing to open up -- typically the conversation just flows -- and when someone is putting the brakes on chit-chat -- typically the conversation falls flat.
  • If talk is not in the cards, then consider an offer of food. Sometimes actions speak much louder than words. So think about calling a restaurant in your friend's town and ordering a meal to be delivered right to the door. Most eating establishments accept credit card numbers over the phone so location should be a non-issue. Even those deep in despair need to eat, and taking away the chore of cooking and cleaning up can be quite a gift.
  • If the gift of food is not up your alley, how about sending a small gift, like a candle, a pair of cozy socks, a grocery store gift card, a music CD, a gift certificate for a spa. You name it, your special something might brighten the day.
  • If you live near your loved one and have some free time, offer to drive to appointments, visit during treatments, pick up kids and entertain them for the day, clean house, cook, and clean up dinner. Try to be very specific with your offers. Say, "I'd like to pick up your kids tomorrow at lunch so you can take a nap" or "I'm coming over on Sunday to rake leaves." These offers are easier to accept than the "call me if you need anything" kind.
  • If a quick stop at your loved one's house is possible, drop off a book on the front porch or set some pretty potted flowers by the door. Or do both. Then walk away without saying a word. Let your help take your friend by surprise.
  • When you do have the chance to talk, avoid guiding the conversation with your own thoughts and advice, unless requested. Saying, "Everything will be OK," for example, may not be true. Assuring your friend she will sail right through chemotherapy may backfire if nausea and fatigue are just down the road. Stating, "it's OK, your hair will grow back," doesn't really help those living with the horror of hair loss. So stay away from promises and predictions and stick to the present. Ask questions, listen, and paraphrase back what your friend has shared. These are basic counseling techniques. The premise is that allowing the person to work through the issues is more important than what we can do to directly help.
  • Don't forget about the good old greeting card or short note that lets your loved know how much you care. Let the card say it if you wish to avoid writing and then add an address, a stamp, and send your support on its way.
  • This makes eight -- so much for sticking to my Sunday plan -- but I must share this too: Don't forget about your loved one after months and even years pass by. Initial diagnoses are tough and treatments are tough too. But as your friend survives each day, remember to check in. Cancer is a life-long battle for many. Support and assistance may be just as valuable a year down the road as it is on day one.

Sunday Seven: Seven positive thoughts about chemotherapy

Luanne Austin says chemotherapy is not all it's cracked up to be. She doesn't mean it's cracked up to be something really great but is far from such a thing. She means it's cracked up to be something pretty horrible but is really not all that bad.

Austin says the day her doctor announced she would receive chemotherapy was almost as bad as the day she learned she had breast cancer. That's because she had heard nothing but bad things about the treatment. She expected to be laying in bed with her life in the balance -- nauseated, vomiting, sick -- as the "cure" killed her.

All expectations aside, Austin decided to tackle chemotherapy with a positive attitude. This may seem a daunting task -- turning a dreaded chemotherapy protocol into a not-so-bad experience -- but Austin mastered the task. And here are seven of her positive thoughts about a treatment that is not all it's cracked up to be.
  • Austin talked to people who had traveled journeys similar to hers. What she learned is that many women continued working through treatment. Some suffered very few side effects. One woman even told Austin her experience was super. Austin was inspired by the positive women she tracked down. And now she inspires others.
  • Austin did some reading. She learned that chemotherapy drugs target quickly-dividing cells, like cancer cells, red and white blood cells, blood platelets, and digestive tract cells. Learning about the process helped her realize chemotherapy was intended to make her well, not make her suffer.
  • Austin learned how to support her body through treatment. She came to understand that the best chance of surviving breast cancer comes from conventional medicine -- surgery, chemotherapy, radiation -- but that alternative treatments can complement the traditional approach. She recommends the book Breast Cancer: Beyond Convention and considers her pursuit of a healthy diet, exercise, supplements, and a good night's sleep some of her most helpful chemotherapy add-ons.
  • When Austin felt weak, tired, and just plain zoned out, she retreated to her bed with a good book and a cup of tea. Instead of considering it a setback, she called this downtime a good excuse to spend hours reading.
  • Austin found relief from her nurses. They were terrific, she recalls, and professional and friendly and respectful too. Getting to know her medical crew -- and receiving hugs from them at the end of her treatment -- confirmed chemotherapy has some good points.
  • For Austin, God -- who carried her through her whole journey -- was instrumental in her positive outlook. She felt lifted up and carried, she says.
  • And then there's love -- pure and simple love from her husband and family members -- that allows her to conclude that chemotherapy is not so bad. "I'd have to say chemotherapy hasn't been all that bad," she says. "Not bad at all."

Support to Go: The Unbook for the Journey Through Breast Cancer

My nose was buried in books just after my breast cancer diagnosis. I craved information and thought the pursuit and acquisition of it would somehow help me gain control over a seemingly uncontrollable disease.

For the most part, reading helps me. But sometimes, I read too much -- "Stop reading", my oncologist instructed me one day after I rambled off a bunch of worries I'd gathered from research -- and I've been known to get overwhelmed by statistics and numbers and theories and clinical jargon. When this happens, I usually find refuge in the personal stories of women living with breast cancer. Those who have weathered the cancer storm are often the real experts on cancer and know how to sift through the details, offering just what's important to all who follow.

For more than a decade, two-time breast cancer survivor Pat McRee searched for the perfect guide she could recommend for women she saw at the Flying Colors cancer resource and support center she directs.

"Too long," "Too detailed," "Overwhelming," "Just plain scary," were the responses she heard about the books she had found.

So she decided to think outside the book, to create her own support guide. An unbook is what she calls it. And it's not too long, too detailed, too overwhelming, or too scary.

Support to Go, The Unbook for the Journey through Breast Cancer is instead a compilation of survivor secrets, affirmations, inspiring quotations, poetry, song lyrics, attitude buttons, funny anecdotes, and referrals to expert resources in oncology, radiology, surgery, psychology, and complementary therapies.

McRee considers her book a support group of sorts, a place where survivors can turn their wild rides into unforgettable journeys.

Men Bleed Too: One man's struggle to help his wife fight breast cancer

Men Bleed Too is a story written by Thomas Brown. Thomas kept a journal and recorded his wife Barbara's journey through breast cancer, starting in December of 1992, after a cancerous tumor was found in Barbara's right breast.

This book, compiled from the journal entries that captured Thomas's life while going through breast cancer with his wife, provides basic information to help the male caretaker though the process and journey of dealing with a loved one diagnosed with cancer. He talks about medical decisions, care management, medications, treatments prescribed, and the emotional roller coaster of feelings he had when confronted with bad or good news.

This book can give the caregiver of someone diagnosed with cancer a feeling that they are not alone in the daily issues they have to face.

Sadly, Barbara died two years after fighting the disease.

Thomas has since married Connie, who encouraged him to turn his journals into a book. He is also at work on his second book entitled She Taught Me How to Laugh Again. In this story he relates how he and Connie met, helped each other through the grieving process and moved forward with their lives.

Songwriter heirs sue evangelist who promised prayer cancer cure

It is a they said, she said lawsuit of family against family as the children of Darrell Wayne Perry, a Nashville songwriter with credits that include Tim McGraw's Not a Moment Too Soon; Lorrie Morgan's What Part of No; Toby Keith's A Woman's Touch, I Only Miss You, and Every Promise I Ever Made; accuse their evangelical preaching aunt Darlene Bishop, and sister to the deceased, of causing the death of Perry by promising to cure him with prayer after his throat cancer diagnosis in 2003.

Perry's children say Bishop claimed she was cured of cancer through prayer and promised to cure her brother in the same way. According to news reporting, in her book Your Life Follows Your Words, Bishop wrote that faith and prayer cured her of her cancer and her brother Perry of his cancer. In a deposition, she is said to have admitted she was never diagnosed with cancer by a physician, even though she believed she had the disease.

After Perry's death from cancer, Bishop became the executor to his estate. According to the children, Bishop has not given them any of their inheritance, estimated at $750,000 dollars. The children are suing their aunt for wrongful death, clergy malpractice and fraud. Bishop denies all allegations.

The level of grief and the depth of sadness felt when losing a family member to cancer is without measure. You would think that nothing worse could possibly happen. This turn of events following the cancer diagnosis and death of Perry, however it turns out, and wherever the truth is to be found, has reached a new depth in an abyss of empty darkness.

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