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Posts with tag Internet

Internet remains a frequent first source for cancer information, says NCI report

The Internet continues to be a first source of health information, including information about cancer, according to a new National Cancer Institute report.

The study included a telephone survey, and was last conducted in 2003. Since that time, the use of the Internet for cancer information remained unchanged, however there was an increase in people using the Internet to e-mail their physicians. However, people's trust in what they find on their Internet searches has declined slightly according to the report.

Women were more likely to search for cancer information from all sources than men.

Internet information validates doctor opinions

As soon as I was diagnosed with breast cancer, I started reading, researching, and investigating. I hunted down every bit of information I could find about the disease that had somehow tunneled through my breast tissue. What I found kept me in the know. I felt informed and in control -- and a bit skittish too.

My doctor once told me to stop reading. It was causing me too much worry, too much unnecessary stress. And while I didn't stop reading altogether, I did cut down on my Internet research. Since anyone can post anything on the Internet, it can be an iffy source of information. So iffy that some doctors -- like mine -- have expressed concern.

Doctors may be able to breathe a sigh of relief, though. According to a study published in the April issue of the International Journal of Medical Informatics, using the internet generally convinces patients that their doctors are right on track with their medical opinions.

Source: MAMM magazine, May/June 2007

Using the internet to find information on esophageal cancer

In The Swallow Tales, the newsletter of the Esophageal Cancer Awareness Association, Roger Tunsley relates an experience he had upon first meeting his surgeon prior to his esophagectomy. The surgeon's first words to Tunsley were, "Do not Google this disease."

Tunsley offers a few tips for reading information on the internet, specifically regarding esophageal cancer. Tunsley writes, "You can't believe everything you read, especially on the web. Read critically. Statistics are heavily influenced by the date that they were published. Everyone's EC experience are very different."

Good advice for anyone doing an internet search on health issues, including cancer.

I would add, know yourself. If you don't think that you are going to be able to handle information after something like a general Google search which is going to pop up anything and everything, find another way to get the information. Of course, your physician should be your primary source of information regarding your specific case.

For more on esophageal cancer on the internet, a good place to start is the Esophageal Cancer Awareness Network's "Finding Help" page.

Internet changing the way people manage their health

Cisco Network Systems, a company that creates intelligent integrated networks to adapt to current and future business needs, reported on a study that says one in three Americans claim that the Internet changed the way they manage their health.

The main findings of this survey of over 4,000 people include:

  • 62% reported using online health tools.
  • 56% reported improvement in their health management due to personal technology.
  • 2% of patients with chronic diseases thought that online health tools had improved their management.
  • One third of patients thought that online tools enabled them to be an "equal partner with my care providers in making health decisions."
  • 62% reported that they would go to their personal physician for information and advice; 44% said they sought information and advice on medical Web sites; 32% said that found healthcare information and advice through an online search.
  • The Internet ranked as number 3 among the top 5 sources for medical information.
  • 62% said that their physician did not utilize the Internet to manage their health.
  • Among ways respondents said that their physicians do utilize the Internet include: direct e-mail communication with patients; scheduling of appointments; offering a way to check on practice and credentials on a Web site.
  • 27% thought their physician fully embraced the Internet.
  • Only 11% of physicians communicate by e-mail even though 45% of Americans would like this method of contact.
  • 34% of patients wanted to access lab results by a secure Web site while only 7% stated that they had this option.
  • 33% would like to schedule appointments online but only 7% said that this was currently available to them.
  • 40% of patients had privacy concerns with the use of the Internet. A quarter of patients were concerned that private medical information could be used inappropriately.

Cancer topics keep stacking up

Someone asked me the other day how I continue to come up with topics for my posts. I wish I could say it was a chore to find material on cancer, but it isn't. There is always something to write about -- so much to write about, in fact, that if I had the time and energy, I could write volumes each day.

I find my topics in newspapers, in magazines, and in books. I spot them on television, on the radio, on the internet. I draw from personal experience and from others' experiences. I write and write and write because cancer just keeps on appearing in my life. I wish it didn't.

Cancer is everywhere. And it offers me an endless reserve of material that just keeps stacking up. So how do I come up with topics for my posts? I don't. The topics come to me.

Procrastination a waste of time, money, health

It's been reported that procrastination is on the rise. Not only that, but it makes people poorer, fatter, and unhappier too.

It took 10 years of research when it was projected to take only five years -- procrastination at its best -- to come to this conclusion. And now Canadian industrial psychologist and University of Calgary professor Piers Steel is talking about his giant 30-page study that appears in this month's Psychological Bulletin.

Something must be done about this problem, says Steel, who reveals 26 percent of the American public consider themselves chronic procrastinators. This is up from five percent in 1978 and is likely due to the tempting diversions facing us in this day and age -- TVs, cell phones, video games, iPods, the Internet, and Blackberries.

It's no surprise with such temptations that a quarter of Americans say they procrastinate. When it comes to the sexes, men are worse than women -- about 54 out of 100 chronic procrastinators are men -- and the young are more like to procrastinate than the old. Three out of four college students consider themselves procrastinators. And it seems perfectionists procrastinate less because they don't like to delay.

Steel says procrastination wastes time. And it's costly too.

"The U.S. gross national product would probably rise by $50 billion if the icon and sound that notifies people of new e-mail suddenly disappear," he said.

Steel found a delay in filing taxes on average costs a person $400 a year. Last-minute Christmas shopping with credit cards was five times higher in 1999 than in 1991. Clearly, procrastination is expensive.

Procrastination also has physical and emotional costs. Procrastinators tend to be less healthy, less wealthy, and less happy. They are also harder to heal of their problems than alcoholics.

Steel, who plans to one day compare the procrastination practices in various countries and cultures, says his field has benefits. The more he knows about the problem, the less he indulges in delay tactics. He did, however, acknowledge that his study was completed five years late. But what he likes about this study is this -- "If you take a day off from it, you can always say it's field research."

Earthlink CEO Garry Betty dies from cancer

At the end of November, EarthLink CEO Garry Betty took a medical leave of absence from his job to fight adrenocortical cancer, a serious form of cancer characterized by a tumor that occurs in the adrenal glands above the kidneys. On Tuesday, Betty died at his Atlanta home from complications of the disease. He was 49.

Betty joined the internet service provider EarthLink in 1996 and helped the regional company grow from a provider with 500,000 subscribers into a national powerhouse with more than five million subscribers.

"Garry was instrumental in building EarthLink into the company it is today," EarthLink Chairman Robert M. Kavner said in a recent statement.

EarthLink was just one of Betty's successful ventures. He began his career at IBM Corp. and won the IBM President's Excellence Award in 1982 for his work on the company's personal computer. He also served as CEO of Digital Communications Associates Inc. and at the time became the youngest CEO of a company listed on the New York Stock Exchange.

Betty, who graduated from the Georgia Institute of Technology in 1979 with a degree in chemical engineering, was responsible for 2,200 EarthLink employees. And in support of his team, he attended the company's 2006 Christmas party just three weeks after receiving his diagnosis.

"He put on a tux and came out for a night to make all of us feel better," said Mike Lunsford, interim EarthLink CEO. "And he succeeded."

Betty is survived by his wife, Kathy.

EarthLink CEO takes leave to fight cancer

EarthLink President and CEO Garry Betty was diagnosed just days ago with a serious form of cancer, and he will take a medical leave of absence in order to tackle the disease head on.

"Garry is a fierce competitor and has the determination to beat this disease," said EarthLink founder Sky Dayton.

Betty, at one time the New York Stock Exchange's youngest listed CEO, joined the EarthLink team in 1996 and has earned tremendous respect and recognition among the Internet, financial, and business communities. He is now earning support as he takes on his newest challenge -- cancer.

Mike Lunsford, executive vice president of voice and access at EarthLink, will act as interim CEO and will immediately take on Betty's daily responsibilities.

Atlanta-based internet service provider EarthLink has earned an award-winning reputation for outstanding customer service. Serving more than five million subscribers, EarthLink offers high-quality connectivity, minimal online intrusions, and customizable features.

Cancer help delivered to mailbox, for free

Living Beyond Breast Cancer (LBBC) -- a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life -- recently began offering a new resource for breast cancer survivors, for both the newly diagnosed and those with metastatic disease.

"The first few weeks after diagnosis can be extremely difficult emotionally, and women with advanced disease often do not get the support and resources they need," said Jean Sachs, LBBC executive director. "We want to give them an understanding of their choices to help them make informed decisions regarding their physical and emotional health."

This understanding comes in the form of a 28-page brochure -- What to expect . . . today, tomorrow and beyond: Steps for coping with the medical, emotional and practical concerns of breast cancer -- available free on the Internet or by request. This guide, a road map, addresses topics such as coping with the news of a new diagnosis, telling family and friends, understanding pathology reports, choosing a medical team, asking for help, and finding support.

LBBC offers multiple addidtional resources -- including specialized navigation tools on its website that lead to a wealth of information. Visitors can Learn More about LBBC. They can Stay Informed through news, message boards, and other resources. They can Participate in events and programs. And they can Support LBBC through volunteer efforts and financial donations.

LBBC was founded in 1991 by a radiation oncologist who focused exclusively on meeting the needs of women post-treatment. She ran the organization out of the third floor of her home using volunteers. Few resources existed for women affected by breast cancer at the time, and so she tried to fill the void. In 1986, an executive director came on board, increased the LBBC budget from $100,000 to $1.8 million per year, expanded all programs and services, and worked to secure LBBC as a solid, dependable resource for all women, of all stages of breast cancer and in all phases of treatment and recovery. And now, in 2006, that is exactly what it is.

Men get breast cancer -- online resources and support for men

My father taught me that when you have a problem, find someone else who has the same problem and talk to them about it. Real life experiences trump almost every other kind of information. Although women are 100 times more likely than men to be diagnosed with breast cancer, and less than one percent of breast cancer patients are men, men do get breast cancer.

Some of the signs of breast cancer include:
  • Lump or thickening in the breast.
  • Skin dimpling or puckering.
  • Development of a new retraction or indentation of the nipple.
  • Redness of scaling of the nipple or breast skin.
  • A spontaneous clear or bloody discharge from the nipple.
Some of the known risk factors include: age, family history, genetic predisposition, radiation exposure, Klinefelter syndrome (a congenital abnormality of the sex chromosomes X and Y), exposure to estrogen, liver disease, excess weight and excess alcohol consumption.

Breast cancer resources for men are few and far between, but to follow my father's advice about finding someone to talk to and learn from that has faced the same real life experience, I tracked down several resources men diagnosed with breast cancer might find of interest.

Newsday is featuring the personal story of breast cancer survivor Cameron Alden. Alden tells his breast cancer story as part of a personal cause to raise awareness that men can be diagnosed with breast cancer.

USA Today's Richard Roundtree 'Knows the Score' on cancer features breast cancer survivor Roundtree's personal story and his work with the Susan G. Komen Breast Cancer Foundation to raise men's awareness about the disease.

The John W. Nick Foundation was created in memory of John W. Nick, who died from breast cancer at the age of 58. Male breast cancer survivors John W. Nick, Captain Edward J. Wilson, Bob Stafford, Walter Creekmore, David Eisenberg, Mark Eldridge, Dave Lyons, and Ken Graham by Sue Graham share their personal stories of breast cancer on the foundation website.

MALEBC is a discussion mailing list for men with breast cancer. Currently it has 27 members.

Because men often face shock, embarrassment and isolation when diagnosed with breast cancer, the National Breast Cancer Centre has launched Breast Cancer in Men, Australia's first website launched for men with breast cancer offering information and resources from diagnosis to living beyond breast cancer written specifically for men.

The American Cancer Society estimates that 1,720 men will receive a breast cancer diagnosis this year, and 460 men will die from the disease. For men, breast cancer is most frequently diagnosed between the ages of 60 and 70. If any of our readers are aware of other internet resources specifically written for men facing breast cancer, please leave the resource and a link in the comments area following this post.

Sunday Seven: Seven survivor spotlight similarities

It's day 15 in this Breast Cancer Awareness Month and the survivors spotlighted on this site are stacking up. Yet we've only just scratched the surface of breast cancer survivor stories. And by the end of October, we will have only featured a very small sample of survivors everywhere. There are countless others with their own powerful stories. It's sad there are so many stories shaped by breast cancer. It's empowering too -- because breast cancer survivors are a passionate bunch. They are passionate in their fights, passionate in their beliefs, passionate in their willingness to help others.

A passionate bunch of survivors can be found here on The Cancer Blog. They are all women, of various ages, with various backgrounds, defined by different experiences. They are also quite the same -- for they have all been touched by breast cancer. And their words of wisdom are strikingly similar, despite the contrast in characteristics that define these women and their very individual battles with breast cancer.

Here are seven survivor similarities worth spotlighting.

Continue reading Sunday Seven: Seven survivor spotlight similarities

Survivor Spotlight: Gayle Shlafer sets sights on normalcy

Gayle Shlafer is a 34-year-old wife and mother who lives in Gainesville, Florida. She is a technical writer and editor -- although her secret (or, not-so-secret anymore) ambition is to write novels. She is not ready to embark on her novel just yet, though, because breast cancer has put a lot of family plans on hold. But she considers this whole cancer thing a temporary set-back. And she is patiently waiting for a bit of normalcy to return to her world.

Gayle is my neighbor. She is an inspiration. She is a survivor. And the words that follow are her own.

Continue reading Survivor Spotlight: Gayle Shlafer sets sights on normalcy

Breast cancer survivor auctions boobs as art

Molly MacDonald knows it will create attention and that is what she wants in order to raise funds for a non-profit to help women struggling with financial issues while they undergo breast cancer treatment.

Last year, MacDonald was diagnosed with breast cancer and what she remembers is the financial struggles of meeting monthly living expenses and medical expenses. She was between jobs, and found herself barely making if financially and needing to borrow money.

MacDonald would like to help other women who find themselves in the same bind of not only worrying about surviving the chemotherapy and radiation treatments for breast cancer but also how to keep the pantry stocked and sometimes, how to keep from becoming homeless. On Monday, MacDonald is launching an eBay auction of a bust of her pre-surgery breasts.

According to the feature story of events planner and graphics consultant MacDonald, "The great thing about eBay is if it's weird, it gets attention." The bust up for auction was cast by artist Nance Aitchison in dental stone and painted gold and yellow the night before MacDonald's breast cancer surgery last year.

On behalf of women facing financial struggles during breast cancer treatments she hopes to help with her fundraising efforts, she said she is ready for her 15 minutes of eBay fame. MacDonald is calling her non-profit the Pink Fund.

No, Venus de Milo is not up for auction.

Warriors in Pink: enter to win new car help create virtual quilt

Grey's Anatomy has teamed up with Warriors in Pink in a sweepstakes called Gear Up with Grey's Anatomy. The Warriors in Pink Prize Package winner will receive a 2007 Ford Fusion, a trip to the Grey's Anatomy set, and a Warrior in Pink apparel package including gear autographed by the cast of Grey's Anatomy. No purchase is necessary to win and the deadline to enter the sweepstakes is 11:59 PM (EST) on December 31, 2006. For more details, and to enter the sweepstakes, visit Warriors in Pink Gear Up with Grey's Anatomy Sweepstakes.

In addition, Warriors in Pink has launched a magnificent virtual quilt online. Breast cancer survivors and co-survivors are invited to contribute to the quilt with a personal message of encouragement, inspiration, love, support and celebration by designing a symbolic patch that will then be added to the Virtual Quilt online. According to the keepers of the Warriors in Pink Virtual Quilt, "There is strength in numbers, and decorated with the Warriors in Pink symbols, each patch is a personal message for friends and loved ones. Experience the vastness and behold the Warriors in Pink beautiful and valiant fight against breast cancer."

The Virtual Quilt is also available as a screensaver. To date, there are 2740 patches. To visit, the Virtual Quilt requires Flash Player 8 or higher.

Prostate Cancer: interactive web tool for men

The Prostate Cancer Research Foundation of Canada has launched an interactive web resource to assist men in facing prostate cancer and in finding answers regarding prostate cancer diagnosis, treatment and survivorship.

Called Prostate Cancer Assessment Tools (PCATs), each of the 12 PCATs provides individualized information that will help each man better understand prostate cancer.

A sampling of the PCATs are as follows:
  • Based on age, PSA, percentage of free PSA, and DRE findings what is the likelihood that I have cancer, if a biopsy is performed?
  • Based on the characteristics of my cancer, what is the likelihood that the Gleason sum found on biopsy is higher than the Gleason sum on final pathology, when the prostate is removed?
  • Based on the characteristics of my cancer, what is the likelihood that the cancer has spread beyond the capsule of the prostate?
  • Based on my PSA, cancer stage at DRE, biopsy Gleason sum, the cumulative length (mm) of cancer on all biopsy cores and on the percentage of positive cores, what is the likelihood that my cancer is clinically significant (i.e., one that may kill)?
  • Based on my cancer characteristics what is the likelihood that my cancer represents a (TZ) transition zone cancer?
  • Based on the characteristics of my cancer, what is the likelihood that my PSA will increase and indicate a relapse of my prostate cancer after radical prostatectomy?
To learn more, and to make use of this interactive tool, visit the Prostate Owners Manual.

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